CAREGIVING
Finding My Husband Again
My husband, Bob, and I began a wondrous new journey. All because of a dream. Now, we are the happiest we have ever been, though it took four years.
Most
of us will be caregivers in some way. By sharing our lessons, I'm
hoping you won't have to wait as long as we did to
heal.
On
Jan. 22, 2003, quite literally overnight, I developed a permanently
disabling spinal cord disorder. Bob became my round-the-clock
caregiver. With our wonderful marriage of 25 years, we figured we'd
cope beautifully. But we
didn't.
Nobody meant harm; nobody was to blame. But
nobody was prepared for what lay
ahead.
After surgery, we were euphoric that I wasn't
completely paralyzed. My neurologist called it ''the honeymoon
phase.'' We thought it would last. Our entire marriage was a
honeymoon. But soon, reality hit
hard.
Bob
needed to dress me, clean me and do every household chore. I felt so
guilty, but I didn't tell him. Bob felt overwhelmed, but he didn't
tell me.
Never wanting me to feel bad, he'd say,
''It's nothing,'' when I'd thank him. Our roles became exclusively
caregiver and sick person. ''Where did husband and wife go?'' I'd
wonder - to myself. The distance was evident in my dreams. Not once
in four years was Bob in any of
them.
Instead of reaching out to each other or to
friends or therapists, we metaphorically locked ourselves in
self-made emotional isolation rooms. We'd have crying jags, but kept
them barely audible - never wanting to break each other's heart. If
only we had cried together, we'd have mourned our loss and started
to heal.
My
self-esteem took a nose dive. Once an independent, self-assured
woman, I became dependent and subservient. I was a burden. I
constantly apologized for needing help. ''I'm sorry I can't put my
socks on by myself.''
I
longed to talk with Bob. But it seemed more loving not to. I
desperately wanted to tell him what living in this defective body
was like. I needed to share - to be heard and understood. That's
exactly what Bob needed, too.
Then
a miracle happened. Recently, he said, ''Last night was the first
time I dreamed you were disabled.'' He became tearful. I touched his
face. ''It's fine to cry.'' Timidly I asked, ''How did you
feel?''
''The way I have all along. Protective.'' He
hung his head. ''And powerless to fix
you.''
''Nobody can.'' I kept my hand on his face -
so needing to touch him, so needing to be touched. ''It would help if you'd tell me how you're
feeling.''
''It's hard. When I'm exhausted or my back
hurts, you'll feel bad.''
''I
could rub your back.'' I held his hand like the lifeline it is.
''I've never told you about feeling like a
burden.''
''I
love taking care of you!'' he said. ''I want 'us'
back.''
''Oh, so do
I.''
''I
think we're having a breakthrough.'' We were laughing through tears.
Then he told me his dream.
''We
were on a beach and we had to get to an island. I don't know why.
There was a boat. I panicked.'' He knows - no more boats for me. I
have no balance. After a deep cleansing breath, he said, ''A path
appeared. We walked across on soil. I held my arms around you so you
wouldn't fall, and you held me for
support.''
We
put our arms around each other, as in the dream, but now for
emotional support. I said, ''You made our path,'' I could barely get
the precious words out, ''on solid
ground.''
I
had never felt anything more profound in my
life.
And
just as our roles had instantly changed that fateful day long ago,
we were no longer caregiver and sick person. We were lovers and best
friends.
Though Bob has always been the man of my dreams, he's back in my dreams as well. We have finally found our way.